caregivers

New program reduces burnout in dementia caregivers, novel research evaluation proves

Taylor Thomas — Wed, 29 Oct 2025 12:41:27 +0000

New program reduces burnout in dementia caregivers, novel research evaluation proves Taylor Thomas Wed, 10/29/2025 - 08:41

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Y. Alicia Hong, PhD

As the old saying goes, you cannot pour from an empty cup. To give time and energy to others, it is vital to attend to one’s own well-being. As the U.S. population ages, there is a growing demand for tools that support the more than 19 million people who serve as caregivers of family members with Alzheimer’s Disease and related dementias (ADRD). Family caregivers of individuals with ADRD are vulnerable to poor mental and physical health due to long-term, strenuous caregiving and lack of support.

Kang Shen. Photo provided

A novel process (i.e., delivery and functionality) evaluation developed by Kang Shen, PhD health services research student at �鶹��Ƶ’s College of Public Health, establishes that user-friendly digital interventions are the solution. WECARE 2.0, a culturally tailored digital health program, is proof as it has enhanced caregivers’ physical and mental health.

“WECARE’s approach—combining cultural relevance with an accessible, widely used technology app—proved to be highly effective and well-accepted by users. High user satisfaction, participant retention, and significant improvements in caregiving skills and positive aspects of caregiving all point to WECARE’s promising early results,” said Shen, who is a first-generation student and also has a bachelor's and master's degrees in health informatics from George �鶹��Ƶ.

The study, Process evaluation of a digital health intervention for dementia caregivers: Integrating active and passive measurements, was published in September 2025 in Alzheimer’s & Dementia, the premier journal of the Alzheimer’s Association and the leading journal in the field.

Participants became more knowledgeable about ADRD, learned problem-solving strategies, improved their personal caregiving skills, reduced stress, increased social support, while being user-friendly.

“This program [WECARE] is so good, easy to understand, even for a 70-year-old. I don’t like reading text and can play the recording instead. I like your how-to videos; I can open them whenever I want and watch them multiple times,” one program participant shared.

WECARE, which was originally designed by Y. Alicia Hong, a Department of Health Administration professor and digital technologies intervention researcher and specialist, was delivered through the social media app WeChat. Through the platform, researchers provide easily accessible educational articles and videos, tips on practicing self-care, and opportunities for social connection with other caregivers.

Innovative Evaluation Methods

Shen’s process evaluation of WECARE 2.0 is the first to employ multiple—qualitative and quantitative—data collection methods. With data from surveys, interviews, self-reported reviews, and website engagement, Shen measured how often participants opened the app and its accompanying resources, how long they spent using the resources, and feedback of the program at the intervention’s conclusion.

Shen’s approach also highlights the importance of creating tools that do not simply exist but are observable to implementers for timely improvement. Unlike previous evaluative methods, her use of short surveys (active measurement) and tracking user activities on the backend (passive measurement) offers program developers comprehensive insight into what works, what doesn’t work, and why throughout the intervention process.

This innovative process evaluation method can facilitate developing more effective digital health interventions for underserved dementia caregivers. Results are being integrated into the next version of WECARE and can inspire future interventions.

“This study serves as a framework for creating and evaluating digital health tools that are culturally grounded and genuinely accessible for diverse, underserved caregiving communities. Our goal is to inspire a shift toward more inclusive and effective support systems that meet caregivers where they are, leveraging familiar technologies to overcome access barriers,” said Shen.

Her research was supported by Hong. Additional co-authors include Yixuan (Janice) Zhang from the College of William and Mary Department of Computer Science, Hae-Ra Han from the Johns Hopkins University School of Nursing, Jessica Lin from the George �鶹��Ƶ's Department of Computer Science, and Kenneth Hepburn from the Emory University School of Nursing.

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$3 million National Institute on Aging grant will provide much-needed support to underserved dementia caregivers

Taylor Thomas — Wed, 15 Oct 2025 13:11:07 +0000

$3 million National Institute on Aging grant will provide much-needed support to underserved dementia caregivers Taylor Thomas Wed, 10/15/2025 - 09:11

More than 7 million Americans live with Alzheimer's disease and related dementias (ADRD), supported by 12 million unpaid family caregivers whose contributions are valued at $413 billion annually. As the U.S. population continues to age, the number of people with dementia and their caregivers will nearly triple by 2050. Innovative solutions to support family caregivers are urgently needed.

Y. Alicia Hong. Photo provided.

Now, with a $3 million grant from the National Institute on Aging (NIA), �鶹��Ƶ digital health intervention researcher Y. Alicia Hong is poised to change that. Hong led an interdisciplinary team to develop the Wellness Enhancement for Caregivers (WECARE) as a culturally tailored, digital health intervention to enhance caregiving skills and improve the well-being of dementia caregivers. The new grant will allow her team to further refine WECARE using artificial intelligence (AI) and evaluate it with a randomized controlled trial.

“WECARE is one of the first personalized digital interventions for dementia caregivers,” said Hong, a professor in the College of Public Health's Department of Health Administration and Policy. "Though it is designed for Chinese American dementia caregivers, it can be adapted for other groups and serve the growing demand for digital support for dementia caregivers in an aging society

The seven-week program will provide participants with informational ADRD multimedia content, quiz games, social networking with other caregivers, personalized feedback, and additional individualized resources. WECARE’s success will be evaluated by measuring the depressive symptoms reported by participants. The project also intends to identify barriers to and facilitators of WECARE’s adoption and long-term use.

This resource comes at a critical time as the aging population grows, and more people with ADRD require caregivers. Additionally, most family caregivers have chronic conditions due to prolonged and intensive dementia caregiving, causing an increased need for resources that sustain the health of family caregivers.

Hong’s grant titled “WECARE: A Personalized Intervention for Underserved Chinese American Dementia Caregivers” will take place from September 2025 to August 2030, for a total of $3,088,427. WECARE is directly responsive to NIA’s priority of effective interventions for ADRD-affected populations.

Hong studies the intersection of health services delivery and consumer informatics. Her work explores chronic care and self-care solutions through innovative digital technologies to improve patient-centered outcomes and enhance health care accessibility. Hong’s research focuses on implementation and dissemination science and leveraging digital technologies to enhance health services delivery.

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Y. Alicia Hong, PhD

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For older adults, extreme heat can mean life or death

Taylor Thomas — Fri, 29 Aug 2025 17:54:37 +0000

For older adults, extreme heat can mean life or death Taylor Thomas Fri, 08/29/2025 - 13:54

In This Story

Li-Mei Chen, PhD

Heat-related illnesses such as dehydration, sunburn, and heat stroke are known to be dangerous for everyone, but older adults are at heightened risk and are likely to suffer more drastic health consequences if those close to them, whether that be family members, friends, or caregivers, are not vigilant.

Healthy aging scholar and gerontologist Li-Mei Chen specializes in the health and well-being of older adults, and how caregivers and systems can better support them. Chen, assistant professor of social work at �鶹��Ƶ's College of Public Health, answers pressing questions on how to keep older adults safe in extreme heat, offering actionable preventive measures key to protection from heat exposure.

Why are heat-related illnesses particularly dangerous for older adults?

Failing to understand the dangers of heat-related illnesses can be life-threatening. Compared to younger people, older adults require more water for the body to function properly, such as producing sweat to cool the body. Furthermore, older adults are less sensitive to thirst and will forego drinking water as often as they should. Also, older adults are more likely to have chronic health conditions, which can be exacerbated by extreme heat.

How do common heat-related illnesses manifest differently among seniors?

Heat-related illnesses can manifest differently in older adults. People aged 60 years and older and individuals with obesity, cardiovascular disease, pulmonary disease or long-standing diabetes are at increased risk of heat-related illness. Aging and chronic diseases may impair the body’s ability to regulate core body temperature in hot conditions.

Additionally, personal circumstances contribute to an increased risk of heat-related illness. Older adults who are unable to leave their homes, lack contact with other people, experience severe mental illness, poverty, and decreased mobility face even greater risk.

What are some early warning signs to look out for?

Early signs of heat-related illness include dizziness, redness in the face, excessive sweating, muscle pain, and leg cramps. As the symptoms worsen, older adults may experience nausea, vomiting, fatigue, weakened consciousness, and high body temperature.

If you are with someone showing signs of heat-related illness, remove them from direct sunlight, such as to under the shade of a tree, and try to relocate them to a cooler environment. Placing cold wet clothes on the forehead and neck can help alleviate symptoms and bring body temperature down. If symptoms are not improving, call 911 so medical professionals can render care.

Top 10 Tips to keep older adults safe and healthy in extreme heat

Check the weather before going out.
Ensure any venue is older adult-friendly with access to sitting areas and places to escape the heat periodically.
Hydrate! Take small sips of water regularly, even if not thirsty.
Apply and reapply sunscreen with a minimum of SPF 30.
Wear sunglasses and a hat.
Dress in breathable, lightweight clothing.
Monitor indoor temperature, humidity, and ventilation.
Adjust air conditioning as needed to keep indoor spaces cool.
Keep furniture away from direct sunlight.
Have a plan in place in case of emergency with family, friends, and neighbors, and be prepared to take action.

MEDIA INQUIRIES: For reporters who wish to speak to Li-Mei Chen about heat and older adults, please contact media contact Michelle Thompson at mthomp7@gmu.edu.

Li-Mei Chen is a gerontologist and a healthy aging scholar. She is an assistant professor of social work in �鶹��Ƶ’s College of Public Health. She is also a Fellow of the Gerontological Society of America. Chen’s teaching and research focus on dementia and aging, productive aging, intersectionality and the role of lifecourse in older ethnic minorities, community gerontology, and social policy. Her recent projects included hosting an international seminar in Japan on person-centered care for dementia, community-based strategies for civic engagement of older adults and the role of structural injustices and social exclusion on minority health and well-being. Her research includes developing a VR-based training for certified nursing assistants that will expand empathy for dementia patients. Recently, Chen took part in the annual Gerontological Society of America’s (GSA) Capitol Hill Advocacy Day to champion aging-related policy priorities.

�鶹��Ƶ �鶹��Ƶ

�鶹��Ƶ is Virginia’s largest public research university. Located near Washington, D.C., �鶹��Ƶ enrolls more than 40,000 students from 130 countries and all 50 states. �鶹��Ƶ has grown rapidly over the past half-century and is recognized for its innovation and entrepreneurship, remarkable diversity, and commitment to accessibility. In 2023, the university launched �鶹��Ƶ Now: Power the Possible, a one-billion-dollar comprehensive campaign to support student success, research, innovation, community, and stewardship. Learn more at gmu.edu.

�鶹��Ƶ College of Public Health at �鶹��Ƶ

The College of Public Health at �鶹��Ƶ is the first College of Public Health in Virginia and a national leader in inclusive, interprofessional, public health research, education, and practice. The college is comprised of public health disciplines, health administration and policy, informatics, nursing, nutrition, and social work. The college offers a distinct array of degrees to support research and training of professionals dedicated to ensuring health and well-being for all. The college’s transdisciplinary research seeks to understand the many factors that influence the public’s health and well-being throughout the lifespan.

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Virtual reality adds empathy to dementia care

Mary Cunningham — Fri, 06 Jun 2025 14:52:46 +0000

Virtual reality adds empathy to dementia care Mary Cunningham Fri, 06/06/2025 - 10:52

At a conference on aging two years ago, Li-Mei Chen slipped on a pair of virtual reality (VR) goggles and found herself inside the mind of a person with dementia.

The simulation cast her as an older adult in the grips of delusion: frozen in fear at the end of a hallway, watching the floor disappear beneath rising water. “There was no actual flooding,” Chen recalled, “but I could feel the panic.”

Assistant Professor Li-Mei Chen partnered with fellow social work professor Megumi Inoue to launch a pilot to train certified nursing assistants through virtual reality. Photo provided.

Chen, an assistant professor of social work in the College of Public Health at �鶹��Ƶ, specializes in aging and dementia and immediately recognized the technology’s potential for nursing home staff. She imagined caregivers seeing what she saw and walking away with a new kind of understanding and empathy for their dementia patients.

Working with Japanese company Jolly Good Inc. to adapt their VR technology, Chen launched a pilot this spring to train certified nursing assistants (CNAs) at a Northern Virginia nursing home. The three-part program combined immersive VR scenarios with online lessons and group discussions.

Wearing headsets, participants stepped into the disoriented minds of dementia patients—experiencing the confusion, fear, and memory lapses firsthand. In one scene, a woman lies in bed, panicked. She recognizes her pajamas but not the room surrounding her, and wonders aloud, “Where is my husband?”

Chen partnered with fellow social work professor Megumi Inoue to design the educational framework. The VR footage, originally produced in Japan, was updated for English-speaking users through artificial intelligence (AI)-generated voiceovers.

Support for an unsung profession

Beyond improving patient care, the project aims to support caregivers working in a field plagued by high turnover, low wages, and minimal if any formal training. In the United States, nursing homes face an estimated 53% annual turnover rate and ongoing recruitment struggles, even as demand for direct care remains high.

Though they perform some of the toughest jobs in health care, Chen said, nursing home staff are often treated as disposable. “There’s little investment in CNAs, because it’s assumed they’ll just leave—but if nursing homes invested, that would change.”

Eventually, Chen hopes to help create new VR scenes set in American care settings and filmed in English. But even with cultural differences, CNAs in the Northern Virginia pilot—many of whom spoke English as a second language—found the material relatable.

Wearing headsets, participants stepped into the disoriented minds of dementia patients—experiencing the confusion, fear, and memory lapses of dementia firsthand. Photo provided.

“They said, ‘We have seen this. We’ve experienced this scenario in here,’” said Zeynep Senturk Mannix, a George �鶹��Ƶ Master of Social Work student who helped Chen facilitate the sessions. “They didn’t even register that the actors were Japanese.”

For many of the CNAs in the program, the experience marked their first exposure to any dementia-specific training. Mannix suggested that the sessions provided a sense of validation. “Their ideas were valuable, and they were able to help shape the future of this study.”

Chen and her team are now analyzing feedback, with plans to present their findings at the American Public Health Association conference in November. They’re also working to refine the VR content and training materials, in hopes of expanding the program in the future to additional care facilities.

Chen sees VR not as a silver bullet, but one tool to support more thoughtful training. Her framework rests upon relationship-centered care, which prioritizes empathy, trust, and human connection.

“It’s about understanding the person, and building a connection that’s beyond client and provider,” she said.

Chen’s project is supported by two grants:

• George �鶹��Ƶ College of Public Health Pilot Award (2025-2026): Relationship-Centered Care for Formal and Informal Caregivers of Persons Living with Dementia: VR and Multi-modal Approaches.

• Geriatric Training and Education (GTE) Initiative at the Virginia Center of Aging (2024-2025): Immersive Training: Enhancing Relationship-Centered Care in Nursing Homes through VR

Learn about more research at George �鶹��Ƶ

In This Story

Li-Mei Chen, PhD

Megumi Inoue, PhD

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�鶹��Ƶ CARES intervention reduces stress and feelings of burden of family caregivers of older adults with dementia

Mary Cunningham — Wed, 29 May 2024 15:50:53 +0000

�鶹��Ƶ CARES intervention reduces stress and feelings of burden of family caregivers of older adults with dementia Mary Cunningham Wed, 05/29/2024 - 11:50

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Dr. Cathy Tompkins

Gilbert Gimm, PhD, FGSA

According to the U.S. Centers for Disease Control and Prevention, 80% of those living with dementia receive informal care from family members or friends. This equates to 16 million family caregivers in the U.S. However, caring for family members with dementia is often associated with increased caregiver burden (which includes emotional, physical, and financial strain), stress, and worse physical health for the caregiver.

Catherine Tompkins, principal investigator, professor of social work, and associate dean of faculty and staff affairs in the College of Public Health.

A recent study published in the Journal of Applied Gerontology, led by �鶹��Ƶ researchers, found that a 9-week online stress management intervention program for family caregivers reduced burden scores by 15% for 97 family caregivers of older adults living with dementia. The Stress-Busting Program for Family Caregivers TM, intervention was specifically designed to help family caregivers manage their own stress when caring for older adults living with dementia or a chronic illness

“In this study, we found evidence of a range in average caregiver burden levels based on the dementia severity category of care recipients. The findings show that an online Zoom intervention in a peer group setting can be beneficial for family caregivers of older adults with mild, moderate, or severe dementia,” said Catherine Tompkins, principal investigator, professor of social work, and associate dean of faculty and staff affairs in the College of Public Health.

The intervention provided family caregivers with education and strategies to manage stress when caring for someone living with dementia. Examples of self-care techniques included breathing and meditation; troubleshooting behaviors associated with dementia; and peer-to-peer support within a virtual group setting.

Associate Professor Gilbert Gimm

“Reducing caregiver burden and managing stress are critical to the well-being of families. These findings show that effective stress management interventions for family caregivers can be facilitated through online peer groups,” said Gilbert Gimm, first author and associate professor of health administration and policy.

“�鶹��Ƶ Caregivers Aiming for Resilience, Empowerment, and Support Study: Assessing Family Caregiver Burden Post-Intervention” was published online in April 2024. Co-authors include George �鶹��Ƶ Associate Professor Megumi Inoue, Professor Emily Ihara, �鶹��Ƶ CARES Project Manager Shannon Layman, and Master of Social Work alumna graduate Harveen Pantleay. This study was supported by a grant (#2021048) from the Retirement Research Foundation (RRF).

The study is part of a larger project, entitled �鶹��Ƶ CARES (Caregivers Aiming for Resilience, Empowerment, and Support), that implemented and assessed interventions for family caregivers.